When it comes to family, I’m sure we can all tell tales that no one else would believe, but those are the stories that remain in our closets. I am public about Max and his condition, and sometimes wish I would have made this blog a bit broader so I could talk about family in general, but I started this blog to talk about Congenital Bilateral Perisylvian Syndrome (CBPS) because there isn’t that much information out there about this condition. So, before you dig into this post much more, this is not a post about CBPS; it’s about the love of family.
I hear people say they love each other all the time. They love this, they love that – you even hear people say “I love you,” but can also look into their eyes and know they don’t really mean it. I wonder sometimes if people really know what love is. Do they know what it’s truly like to love someone, to ache for them and miss them unconditionally when they aren’t around? I’ve lost people very close to me – my brother and godmother. I’ve felt the pain of not having them around anymore and knowing that I’d never, ever see that person again. How do you explain that kind of love? It’s like this… one day you see your brother, you have your love-hate relationship with him (like most siblings do), but you love him. Then one day you’re told that you can never see him again – ever – what does your heart do? For me, it was lost. It hurt. It hated. It was broken. How can you really tell me that I’ll never see him again? How can you tell me that I’ll never be able to talk to him again, argue with him again… love him again. I know, I can still love him, but he’s gone, so I can’t show him that love anymore.
I don’t know if it was my experiences in life with deaf, or because my mother was an awesome mother that brought all of her children close together, but I know what love is. I know that I don’t go longer than a week before I talk to my mother. I know that I definitely talk to my children once a day, and talk to my husband more than a couple times a day. I know that my life wouldn’t exist without all of these people in my life, and I know that I need them as much as they need me.
As a family (the larger family, not just the husband and kids), we spend every holiday together, almost every birthday together, talk on the phone on a weekly basis and typically don’t go more than a week before seeing one another. We do chores and errands for each other without hesitation, we support each other when one is down – financially and emotionally – and we, well, love each other.
I feel like I’m writing a fairy-tale. Please tell me that there are other families out there that believe in unconditional love like this – people that still believe in love between husbands and wives, between families and, especially, between a parent and a child.
I’ll end this post in saying thank you – thank you to all of my family for being there for me when I needed you, thank you being a part of my life and thank you for teaching me what love is. I love each and every one of you.