Disabled Kids & Family Issues

My Max

I’ve felt a lot of hurt in my life, but I think the biggest thing that my heart has gone out to is my children.  I’m sure that any parent could relate, but I think my circumstance is a bit different.

I love white bread with all of my heart, I’d die for him, and the same goes for Max.  But the difference is that I worry about Max more.   I worry about his relationships and I worry about bullying because of his disability, but I find that the people I should be able to trust the most fail on him.   Here I am crying because I’m worried about what 6th grade means for him, and he gets publicly humiliated tonight, and I did nothing. Read more…

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May 14th, 2012
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What Augmentative Communication Device does Max Need?

iPad as Augmentative Communication Device

We’ve had a great start to the New Year.  I’d like to thank God for blessing us, and I’d also like to think it’s due to the family doing more efforts towards volunteering with our community; either way, we are blessed.

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January 25th, 2012
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Ready to be a Teen Mom?

Teen Mom

I think there’s a lot for teen mothers to learn (of course there are), but I think because I had my first child at 18, I have a few things to say.

First of all, you have to want to be a good mom when you have a kid at such a young age (I know, easier said than done), but most teens are typically more into themselves than anyone or anything else – shocking I know, but it’s true.  Look at your friends, what are they into – Boys? School?  Partying? New clothes? New makeup?  New anything?  Guess, what… that’s over.

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January 10th, 2012
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Max is Doing Good in School – And Socializing

Love School

I feel lucky for many reasons, but I don’t know if luck is the word… maybe it’s karma, or maybe it’s God, but we are a blessed family.

We are young parents, we own a home, own our cars, have amazing jobs and can supply for our family, but there’s more to our blessings than just that.  I grew up in a Christian home, and even though I haven’t been as devout as I’d like, I’ve found myself being drawn back to faith more and more over the past couple of months.  I truly think that this is what helps our family thrive and our prayers help others thrive.

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December 8th, 2011
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Family Holidays Without a Voice

Thanksgiving With No Voice

Max usually does really well with vocalizing around family, because we all know about CBPS and how it affects him.  We know that it takes him a little longer to say things and sometimes we aren’t going to understand it the first time.  He typically musters through a sentence the best he can and signs to the people who understand sign language, but sometimes we still don’t get it and he’ll have to write it down.  I think that’s one of the nice things about Max’s CBPS, it doesn’t limit his learning and as soon as he learned to read and write he was able to write down things that we didn’t understand.

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November 28th, 2011
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A Letter to my Husband

Love My Husband

I love you more than you know. I love how funny you are, I love when you take the time to text me just to tell me I’m beautiful and I love that you love me. If I could tell our nieces what love is in a man, I would tell them that it is the feeling of being safe, secure and loved, and that is exactly what you give me. Read more…

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November 23rd, 2011
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Potty Training is for the Boys

Potty Training

If you’ve ever potty trained a child, you know it’s no easy feat and usually involves a lot of bribing. I have two boys, so I’ve never had the pleasure of potty training a girl, but I’ve heard from plenty of other parents that have both, that boys are stubborn as hell when it comes to potty training –yay for us (this is dripping with sarcasm). With our youngest we thought we had potty training techniques down to a science; I mean come on, we’d already gone through potty training with a child with a disability and that was one of the most challenging experiences ever. But no, little brother (a.k.a. White Bread) can put up a fight like you wouldn’t believe. Read more…

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November 9th, 2011
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The Shirt Off His Back

When it comes to fights between my husband and me, they’re usually pretty normal; I mean, everyone’s fights end in torn shirts right?

My husband is known for wearing hole-y clothes (is it holey or hole-y?). It drives me insane, but mainly because he feels that his hole-y wardrobe is okay to actually wear out in public – to work, to dinner, everywhere. I’ve tried throwing away these clothes, but he digs them out of the trash and gets angry with me that I even attempted to throw away his “good” shirts. If I really want to get rid of anything, I have to smuggle it out of the house and throw it away elsewhere, then just hope that he doesn’t miss it. Read more…

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November 8th, 2011
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Dirty Hands, Dirty Faces & Dirty Boys

Dirty Hands, Dirty Boys

A few years back (I think 3rd grade), Max had a square-dance event after school.  We were under the impression that this was one of those events that were choreographed, and more like a Christmas musical, but it wasn’t at all – there were no set partners, no set people to stand across from and not much in the way of organization except the kids knew how to lock hands and swing around.  I don’t think that most parents noticed this though, because the kids were genuinely having a great time laughing, giggling and dancing around the gym floor.  Read more…

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November 5th, 2011
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The Beginning of 5th Grade

5th Grade

Another school year is about to begin and this time Max is at the top of his class, elementary anyways – he’s starting 5th grade.  It’s annoying and exciting at the same time – he’s even nervous.  I don’t know why, maybe because it feels like the end of elementary, or maybe because next year is middle school… or maybe because back in 1st grade, we talked to the 5th grade students at the time, about Max’s disability and disabilities in general.  Read more…

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October 31st, 2011
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